• Endometriosis Facts and Figures
  • The latest facts and figures about endometriosis.
  • 1 in 10 women of reproductive age in the UK suffer from endometriosis.1
  • 10% of women world wide have endometriosis – that’s 176 million worldwide.
  • The prevalence of endometriosis in women with infertility be as high as to 30–50%.
  • Endometriosis is the second most common gynaecological condition in the UK.
  • Endometriosis affects 1.5 million women, a similar number of women affected by diabetes.
  • On average it takes 7.5 years from onset of symptoms to get a diagnosis.
  • Endometriosis costs the UK economy £8.2bn a year in treatment, loss of work and healthcare costs.
  • The cause of endometriosis is unknown and there is no definite cure.
  • INTRODUCTION
  • Endometriosis Africa seeks to increase awareness and educate the general public, especially our female population, about this debilitating illness known as ENDOMETRIOSIS, hereinafter referred to as ENDO. We believe that no one with this disease should suffer in silence; placing particular emphasis on the critical importance of early diagnosis and effective intervention. Our primary concern is working hard to improve the quality of life for all those affected by this illness, at any age, race or social economic status.
  • Since the female population is crucial to the growth and development of any society, it becomes imperative that priority be given to any issue that damages their health and life, in essence, their very existence. We recognize that empowerment over this disease comes through action, and to that end, we appeal to you to lend your support in the fight against ENDO, thus giving women and girls with this disease a chance at a good and normal life.
  • BACKGROUND
  • ENDO is a condition that occurs when tissue similar to the inside lining of the uterus is found outside of its normal location. It is “trapped” in the pelvic area and lower abdomen and rarely, in other area of the body. ENDO implants can be found on the ovaries, fallopian tubes, and ligaments that support the uterus and tissue covering the bladder and rectum. The most common location of endometrial implants in affected women are in the cul-de-sac area (behind the uterus), and near the bladder. If symptoms develop, they typically begin between the ages of 15–40. Sometimes, symptoms begin as early as a girl’s first period. ENDO can affect any woman; however, it is rare in women past the menopause stage; as to afflict with ENDO there has to be the presence of oestrogen, the female hormone. Oestrogen levels fall after menopause.
  • Currently we do not know what causes ENDO. Most expert agree that there are many responsible factors; possibly include genetic, immunological, and hormonal reasons. Many women with ENDO have no symptoms and if symptoms develop, they can vary. The location of patches of ENDO in the body and the way in which the lesions affect the pelvic organs contribute to the symptom’s women may have. Some women may have pain with exercise, sex, periods, difficulty becoming pregnant, pain in the lower abdomen when passing urine, and bleeding in between periods. Other symptoms such as pain when passing feces may also be experienced. The symptoms caused by ENDO can be by other conditions. Whenever any of the above-named symptoms become persistent, tests are usually advised to find out the cause of the symptoms. ENDO is usually confirmed by a laparoscopy. This is a small operation that involves making a small cut, in the abdominal wall below the tummy button (umbilicus). A thin telescope-like instrument called a laparoscope is pushed through the skin to look inside for patches of ENDO.
  • ENDO affects an estimated 1–in-10 women and girls during their reproduction years, that is, usually between the ages of 15–50 years, which is approximately 176 million women in the world, causing many to suffer a life of pain and debilitation and sometimes infertility. If left untreated, ENDO becomes worse in about 4 in 10 cases. It gets better without treatment in about 3 in 10 cases. For the rest it stays about the same. However, complications sometimes occur in women with severe untreated ENDO. For example, large patches of ENDO can cause a blockage or obstruction of the bowel or of the tube from the kidney to the bladder or ureter.
  • OBJECTIVES
  • The overall objective of this project is: to increase awareness and educate women and girls about Endometriosis.
  • In order to contribute to the overall objective, the project aims at achieving the following specific objectives:
  • To be a source of information on ENDO by running a public education campaign.
  • To liaise with the department of obstetrics and gynecology department at the general hospital within your local government development area in partnership on how to educate everyone in your local government.
  • To organize an ENDOMARCH from your local government office to other various areas within your local government. (girls’ high schools, market women and others.)
  • Moving from one secondary school to another with the partnership of the gynecologist at the general hospital, mostly schools where there’s high population of girls for example girls’ high schools to educate them for early discovery of the diseases since it the symptoms begin with age of 15yrs old.   
  • To sensitize society to fully understand the disease, its impact and the devastating challenges women and girls are faced with in the rural areas some Urban areas are already doing the awareness.
  • To create a culture of openness, acceptance and equality.
  • To empower people to help themselves by breaking the silence.
  • To get the government to concentrate on education, prevention, treatment, care, and well-funded research.
  • To gives your administration a great and massive recognition of health awareness to the community.
  • To get the civil society to be involved in the fight to end ENDO.
  • To provide better care and support services, increase access to affordable medicines, treatment and surgery.
  • To create mass awareness through public enlightenment campaigns
  • STRATEGY (methods of achieving this goal)
  • This is an awareness drive aimed not only at uniting women and their supporters to take a stand against Endometriosis, but to influence behavioral change and encourage openness about this “chronic invisible disease”. Here, we adopt various major methods of achieving this goal:
  • Endomarch Campaign
  • Endomarch is a road walk awareness drive where women battling endometriosis and their supporters take a stand against endometriosis to end the lifelong scourge of this debilitating disease.
  • Endomarch is aimed at increasing awareness while participating in the road walk, distributing and disseminating information through fliers and brochures.
  • Questions are asked and answered by medical professionals free of charge after the Endomarch.
  • Endocate Project
  • ENDOmetriosis Awareness Project is a school, organization and community based endometriosis education program. Endocate Project raises awareness, influence behavioral change, promotes a culture of openness and acceptance through an interactive presentation. Each presentation is tailored towards the individual audience and encourages communication and participation. Sessions end with a call to action, where the audience is encouraged to “make a pledge,” and share the information they have learned with their friends and families to help spread awareness and empower young girls and women help themselves by breaking the silence.
  • EXPECTED OUTCOMES
  • By the end of June 2024, most schools and organizations in rural areas of Lagos would have been visited to educate teachers, students and workers about ENDO.
  • By the end of 2026, we expect an improvement in government funded research on endometriosis and specialized training of gynecology and other health professionals in treating affected women and girls.
  • By the end of 2030, most affected by ENDO should have access to affordable and quality diagnostic and therapeutic facilities in all hospitals, particularly government hospitals.
  • CONCLUSION
  • ENDOMETRIOSIS is a disease that may have far-reaching, devastating effects and negatively affects the social wellbeing of women and society in general. Therefore, there is a need to raise awareness, highlight the general lack of information and draw attention to the implications of the disease to healthcare systems. It is critical to carry out more studies to elucidate the prevalence and dynamics of this disease among women of African origin.
  • In Nigeria, recent efforts by individuals and non-governmental organizations (NGOs) to collaborate with global movements that seek to improve awareness of endometriosis on a designated World Endometriosis Month; Worldwide ENDOMARCH represents a significant paradigm shift in world’s approach to this debilitating disease. The involvement of individuals and NGOs in partnership with global movement for ENDO provides an opportunity for Nigeria to encourage research interests in endometriosis and develop enduring evidence-based strategies for managing women suffering from the disease. The foundations for these strategies should be based on emerging new concepts and diagnostic modalities currently available for diagnosing and treating endometriosis in developed countries.
  • To this end, we are looking forward to organizing a walk and/or lectures in different schools, markets, within your local government areas with your full support. We will be looking forward to having meetings with you and your medical officer in your local government.
  • Warm Regards
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